People with Disabilities really do get a raw deal

By JayNo Comments

In these times of economic turmoil, it’s usually ‘every person for them self’.  Basically you have to grab what you can while you can.  Unfortunately everyone is feeling the squeeze of the arbitrary, rushed, deep cuts being imposed on us by the Tories in Mestwinster (Westminster).  Unfortunately, like with most things, it is people with disabilities who are lucking out worse than other people.  OK you might say that I will feel that way just because I have a disability, and that I don’t know how bad it is for other people.  Indeed, I was accused of offending a single mother while on a training course by saying that I should have taxis to get to job interviews.  The reason she was so offended was something to do with the fact that she could say the same thing about childcare.  The thing about that is I agree with her.  She should have childcare costs met while attending a job interview, and if the job she were to go for were to be low paid, she should be entitled to help there with childcare.

Anyway I digress.  Part of the Tory government’s welfare program is, as they would phrase it, ‘to help people get back into work’ and of course the good ole favourite ‘to make work pay’.  On the surface, it doesn’t seem so bad.  ”Finally!” You might think “The Government are going to help me find a job!  I’ve been after one of those for long enough!”.  However what the government are actually doing is forcing people back into work by cutting benefits, although they have not long since raised the National Minimum Wage, but the increase was so negligible that you would not notice.  THIS is the way they make work pay, not by encouraging employers to pay more, but making it so people can claim less in benefits.

Again, you might think this is a good thing, fewer benefits being paid out means that for earners, their tax money is able to pay for other things, and what’s more is that those scroungers should get off their backsides and go and get a job ‘like the rest of us’.

However, we are in an economic low, and there are no jobs!  Also, the government are, in my opinion, not really thinking about the consequences.  Firstly, in an attempt to try and ‘get people back to work,’ they have taken incapacity benefit away, and replaced it with Employment and Support Allowance – whatever that means!  Basically you have to go to one of the shiny new ATOS assessment centres, and the theory is that they perform an assessment to see whether you are fit for work.  If you are not fit for work, you are placed on ESA which actually works out less than Incapacity.  In practice, ATOS are actually given a commission by the government for every person that they take off benefits, and it shows in some of their, in my opinion, dirty-handed practices.  I heard about a lad who had some sort of learning difficulties who had to attend one of these assessments, and he woke up very early to try to take the bus there.  He had to stop on practically every street corner to ask someone if he was going the right way.  After he finally reached his assessment, he was declared fit for work as he ‘was able to make it to the assessment centre’. You have to really have your eyes open when going for one of these assessments, as they can catch you out with seemingly innocent questions.  One example I heard was that someone was asked if they could ‘watch a half-hour episode of EastEnders’.  Saying ‘Yes’ to this question would be seen by ATOS as ‘yes I can sit still and concentrate for 30 minutes’ which actually makes you more likely to be ‘fit for work’ – not that employers take on people for half-hour shifts of course.  It turns out that actually, no I can’t sit and watch a half hour episode of EastEnders, or indeed any soap, not because I think they are mind-numbing rubbish; indeed I used to watch Coronation Street for a wee while from 2009-2010.  However, I had to stop watching as the storylines can really affect me because of my Asperger-induced tendency to focus intensely on certain things, and of course soaps have to have what my best friend in England calls a ‘high attrition rate’ – or in layman’s terms – meaty storylines, and of course deaths of characters.  Having said that I could sit and concentrate for half an hour:  If I couldn’t, I wouldn’t be writing this blog post!  So That’s me already picked more holes in ATOS’s assessments than a slice of Leerdammer cheese.  If that weren’t enough, in South London, the ATOS centre was located on an upper floor of a building, and as they are supposed to be assessing people with disabilities and/or illnesses’ ability to work, you’d think that they would do what they can to make their office accessible?  So Did I!  Turns out we were all wrong; what they actually did was to tell wheelchair users that they were not to use the lifts as it could be seen as a fire hazard if they did.  Errrrrr ……………. okay!  Finally if that weren’t enough, they appear to have the bedside manner of a surly mountain troll whose football team has just lost in the qualifying stages of the UEFA cup.  They seem to show little to no regard for people’s conditions, for example I had heard about a cancer patient who had went to ATOS for their assessment and she said that if they moved her legs they would be very painful, so they endeavoured to do just that, and of course the poor person was subjected to quite a lot of pain.

After all of this, ATOS will declare a lot of people fit for work when they actually aren’t.  Of course when this happens, they have to appeal, and actually they win.  The trouble is that this process usually takes about three months, and yes ESA is backdated once an appeal has been won – at the moment.  However by the time the whole kerfuffle is over, it is time to start again.  If you are ill, and/or you have a disability that is genuinely severe enough that it stops you from being able to work, the stress caused by this vicious cycle will most likely make things worse.  The good news is that the government have realised that there are way too many decisions that are being made by ATOS that are later being overturned  on appeal, and they have decided to act.  The bad news is that they have decided to act by not letting people have access to benefit while the appeal is taking place, so this will invariably leave a lot of people struggling financially!

So, what about those people with disabilities who can work? We are placed on Jobseekers’ Allowance, and it really is a postcode lottery as to whether you have an advisor who specifically is a disability advisor.  If you do get such an advisor, like I have, you might get someone who understands that you might not be able to do certain jobs (I can’t really do retail jobs as I struggle to see on shelves where things are supposed to go).  However, you may not be so lucky.  I was originally referred for WorkChoice – something with a title so misleading and patronising I just want to scream out loud to a highly distorted electric guitar that is being thrashed at an un-natural rate.  However if I did that I would end up wanting to go out to my favourite place in Aberdeen, the Moorings, and I would never finish this blog post.  Instead I will just fill you in on what went on at my Work – haven’t got a  - Choice appointment.

As you, my faithful dear readers, will know I have depression which is sometimes severe.  I therefore decided that I wanted to be upfront and honest with the woman who was at my appointment which was being held in an office that actually looked more like a police interrogation room.  I said to her that I needed work that would be close to me, because as I am visually impaired I would struggle to change busses on a dark night, and on a morning because of my depression I can find it difficult to wake up, so if I missed one bus, and I had to catch more than one to work, I may risk being late for one bus which may cause me to miss the other.  In short I wanted work that was easy to get to.  Instead of realising this, she acted like I was making excuses not to work as she said ‘That’s a lot of negatives about working.  Can you think about any positives?’  I was stunned speechless (which I thought was impossible).  After this I realised Work-didnyhavemuchofa-choice was not for me.  I wouldn’t mind but this particular Work-Choice office was part of a mental health organisation so I would have expected at least a wee bit of support.

Another problem that I think people with disabilities, including myself have is that we just can’t get jobs!  While it is not always the fault of employers, but It says something when the only interviews I get are from employers who have guaranteed job interviews for people with disabilities.  Even then I only think they are doing it to tick boxes.  I’ve taken all the advice about interviews, and I have tried so many different approaches.  Plus I volunteer at Aberdeen Action on Disability where I am now a board member.  I have also done the SHMUWorks course which teaches you about radio production while running a parallel course that teaches you skills to help you become “work ready”.  Unfortunately Politicians and Job Centres alike seem to have this belief that there an abundance of jobs out there and all that we have to do is just take them.  The actual reality is that there are several people applying to every one job, sometimes as low as eight applications to one job, sometimes as high as 40, and even higher for certain jobs.  Companies will be weary of taking on people with disabilities as they might not think that we are ‘up to the job’.

“But Jay! Companies are not allowed to do that! The Equality Act stops that from happenning!”  I hear you cry.  Well, theoretically that SHOULD happen, but in practice, how can you police this?  Companies can roll out all the usual excuses ‘lack of experience, overqualified, etc.’ and nobody need ever know that they’ve discriminated against you because of your disability.  Sometimes you might be lucky enough to get a company who will say to you ‘look, we’re not taking you on because of your disability’ but what then?  My first instinct would be to sue them under the equality act, but they are a company, and will no doubt have much better lawyers than you can afford.  In any case, most employment advisors will advise against suing.  Why?  I think it’s because it somehow looks bad on you.  Great!  People discriminate and we cannot do a thing!

So what does this mean for us?  It means we don’t get jobs!  This leads to us not being able to access more expensive lifestyles  - because despite what the Daily Mail likes to have people believe – we aren’t rolling in benefit money.  Not only that, but for the poor folk who are on Job Seeker’s Allowance, depending on your advisor, you could be BLAMED for not having found a job.  Again I am very lucky in that my advisor seems to actually understand things and knows I work hard to find work.  What if you fall foul of the new Mandatory Work Activity?  For those of you who don’t know the Mandatory Work Activity is Work Experience that the Job Centre plus can make JSA claimants take part in.  Basically you will work with an organisation like Poundland or Tesco for a certain amount of time.  If you have been put forward for one of these courses, you have a week cooling off period, but after that you MUST attend and if you decide to drop you, you will forfeit your benefit.  This program is controversial as job centres have not told claimants that they have a week in which they can drop out without losing their benefit.  Also, it has been said that companies are using the ‘free labour’ provided by this program in the run-up to Christmas.  If that weren’t enough, you are not even entitled Access to Work as it’s an unpaid post.  Access to Work for those of you who don’t know is a scheme by the JobCentre that will pay for any needed adaptations that a person with disabilities might need to do a job.  While this sounds fine and dandy, just like with most everything, this silver lining has a cloud.

However it’s not just in the employment sector that disability discrimination appears to be unchallenged. The thing that motivated me to write this blog-post is that Ofcom have appeared to authorised disablism.

“Wee bit extreme is that not, Jay?” I hear you cry.  I would not have believed it myself but there it is.  Ricky Gervais had said that he thought “He thought Suzan Boyle looked like a mong the first time he saw her.  We all did”.  For those of you who don’t know ‘mong’ or ‘mongoloid’ is a very offensive term for someone with Down’s Syndrome.  People used to term people with Down’s Syndrome as ‘mongs’ because they thought that people with Down’s Syndrome resembled people from Mongolia. Unfortunately Ofcom do not share my view, and the view of any disability activism group or charity that the use of the term ‘mong’ is unacceptable.  While they agree that it is offensive they do feel that as it was said in the context of comedy after the watershed it is okay.  I would hope that Ofcom will change their ruling soon or I will lose all respect for them.  This, however is a sign of how it is for people with disabilities.  Disablism is not as unacceptable as discrimination against other groups of people.  I would like to see disablist hate crime carry more severe sentences, and for education to be given about why disablism is wrong.  Disablism is particularly bad because the people who it is targeted towards can already be suffering from the effects their disability may have on them, and then they have to endure discrimination.  Something has went terribly wrong here!

Have I finished yet?  Not really as the Mestwinster budget cuts have posed another problem.  Big Society has now happenned, and for some reason this now means councils have LESS money than before.  Unfortunately this means they too have had to make cuts.  For a lot of councils this may mean disability charities.  As if people with disabilities didn’t already find it hard enough??!?!?!?!?!?!?!?!?!  Now we may have to plod on without any support.  That’s just fantastic.

So what should be done about this?  I believe we all need to contact our MPs  and make them protect services for people with disabilities.  The council elections are coming up in May, and it is time councillors  made sure to protect US.  I don’t quite know WHAT the Mestwinster government are trying to do, but in my opinion they will not be happy until Britain is poor and people with disabilities are lucked up in institutions.  Personally I EAT my Packard Bell Legend 406CD before I let that happen.  What am I going to do?  I am currently trying to get my business Jay Wakefield Computers off the ground.  I am working on my business plan and hope to receive help from Business Gateway – an organisation in Scotland that helps people start business.

What do I want YOU all to do?  If you have a disability, I need YOU to go out in to the world and keep trying to succeed.  That is all we can do because, well, WE ARE WORTH AS MUCH AS ANYONE ELSE!!!! You do NOT need to feel inferior just because you may have a disability.  There are lots of things we can offer to the world!  If you are reading this but don’t have a disability, I want you to think how hard things can become, and just ensure you don’t make things harder by discriminating, denying access and/or opportunities, and believing us to be a lesser species.

Well – I think that’s all I have to write for tonight.  I’ve written enough on here to fill a University Essay, so at this point I believe I will stop.

Jay Disability Activism, Jay Employment, Jay Life

So 2011 is nearly over

By JayNo Comments

Hi dear readers!  I am typing away on the morning of the penultimate day of 2011.  Tomorrow is New Year’s Eve, and to be honest, even though it was 364 days since I wrote my summary of 2010, it does not seem like it was anywhere near that long ago!

So what has 2011 been like?  Well, this time last year, I was sat here, with my friend up from England.  We went out to my favourite hangout in Aberdeen – the Moorings – to see in the New Year.  I am very glad we did this, because, for those of you who are not familiar with Aberdeen, the Moorings is next to the harbour, and at the Bells, all the ships in the harbour blow their horns.  It really is indescribable being there amidst all of the horns blowing!  For me, it was a much more exciting thing to see in the new year by being there, than watching a fireworks display – although that is not to say the fireworks don’t have their merits.  After the Moorings my friends and I took part in the traditional Scottish er tradition of ‘first fitting’.  Basically this is where you would visit someone straight after the bells on New Year’s with shortbread and coal.  This is supposed to be ‘good luck’ for the new year.  Unfortunately we were minus the coal, but no matter.  The person in question turned out to be my former friend’s mother, who offered us all a wee dram, or Irn Bru as may be the case.

January 1 wasn’t that good for me, because I came down with quite a cold, which had nothing to do with the New Year’s festivities, and unfortunately, this cold did not shift for a few weeks.  However, at the end of January I went to visit, for the first time, some distant relatives in Dalmally.  Dalmally is such a beautiful place which is set against a mountainous backdrop in Argyll & Bute in the West of Scotland.  After my trip to Dalmally, it was time to go back to University and pick up the pieces of my fourth year.  In the autumn of 2010 I was really suffering badly because of my depression, and had been unable to work properly.  Semester 2 started out quite well, but unfortunat4ely, it too went to pot.  In March, after a brief spell of not feeling too bad, my depression returned in full measure, along with a hearty helping of agoraphobia.  I had had my name down for a teaching course at Aberdeen University and had been invited to attend an interview.  However, I had the offer of said interview withdrawn on one rainy Tuesday towards the end of March.  This caused me to become very depressed, and I ended up taking to my bed.  However later that day I thought I had a meeting to go to, the AUSA Equal Opportunities committee meeting.  Unfortunately it had been canceled and I had not received the e-mail, so I turned up at the University.  When I had found out the meeting had been cancelled, I suddenly felt very exposed for no real reason that I could think of.  I ended up panicking inside, phoned a taxi, and ended up going back home to bed.  Later on in March, I started on Citalopram, an anti-depressant.  Unfortunately anti-depressants do take time to kick in, so I continued feeling extremely depressed.  Did I mention that during this time I was supposed to actually be completing my dissertation?  Luckily because I had chosen to go to the University of Aberdeen, I had a very supportive staff force behind me!  My dissertation supervisor was very patient with me, and helped me whenever she could.  In the end though I had to throw in the towel, and just finish off my mentoring course, which I did, and gained a CAS 16 on the 20-point scale overall for that.  In July I graduated with a designated degree in Computing Science, and as a graduation present, my parents bought me my kilt.

Unfortunately in May, my flatmate moved out and I was on my own for two months while I found another flatmate.  This year I had no real success with Gumtree, so taking the recommendation of my former mentor I decided to use www.spare-room.co.uk.  This site was very easy to use.  I was able to post an advert for my room, and I got emails about people who were looking for rooms.  In mid-July I found a flatmate, and she moved in at the end of the month.

In July I started claiming Job Seeker’s Allowance, and to be honest it has actually been quite a challenging time for me.  In July, My depression was still very bad, and I was unable to get out of bed on most days, and that did not bode well for me looking for jobs.  Job hunting is, in my opinion, harder than having a job because if you are on the Autistic spectrum, you may feel better if you have routine, and when you are job seeking, there IS no routine.  Job interviews (if you get that far) are in different places, at different times, and in this economy you look for anything and everything.  Unfortunately because of my disabilities, there is only certain types of work that I can do, and to be honest a lot of employers do, in my opinion, have issues with taking on disabled people.  Also because there is no routine, I find it difficult some times to get out of bed, even to search for jobs, because it is so disheartening to be given rejection letter after rejection letter.

I did, however, enlist the help of North East Sensory Services (NESS) to help me search for jobs.  Their new employment officer was able to help me find some voluntary experience.  I took part in the ShmuWORKS course with the local community radio station SHMU (Station House Media Unit) FM.  This course combined training in radio production with making participants work ready.  If I don’t have a job in the new year I plan to take part in the ShmuTrain course which by the end of it I hope to be able to present or co-present my own radio show as I have really enjoyed it.

This year hasn’t all been doom and gloom however; in the summer I discovered both The Computer Chronicles, and Billy Coore’s youtube channel.  These two things made me realise how much I loved computers, and watching these videos, and playing with older operating systems started to make me feel better.  I therefore decided to find myself an old Packard Bell.  Unfortunately, there does not seem to be any mid-90s examples for sale in the UK, but a nice person in Texas was prepared to sell me the one he had on eBay.  It is a Legend 406CD with a 75MHz Intel Pentium Processor and it came with 8MB of RAM and an 850MB hard disk.  Unfortunately when I received it, the floppy disk drive appeared to be broken.  On opening up the case, and breaking the seal of quality I might add as the computer had not ever been worked on before, I unscrewed the floppy disk drive with the plan of seeing if I could repair it.  On picking it up, I realised there was a rattle, so I removed the front fascia, and had a look inside, and sure enough, someone had tried to load in a Business-card sized CD-ROM.  I removed that, re-installed the front fascia and fitted the floppy drive back to the computer, and low and behold, the drive works!  Unfortunately when I tried to re-format and restore the Packard Bell using a master CD, it became apparent that the CD-ROM drive was on its way out, so I had to replace it.  Trouble was that the only drive I could find at the time was a 24X DVD-RW, so bought that and connected it up to the Packard Bell, and was able to restore it to a Windows 95 installation no problem.  Since then I’ve upgraded the RAM and the hard disk drive, so I have room for all the mid-90s games I want to play.

Playing about with my computer collection helps to alleviate my depressive symptons, but sometimes they can overwhelm me.  However it is good to have found something positive.

Other things that have happened this year?  I have won the first ever NUS Scotland award for Equality and Diversity while at the NUS Scotland Conference in Irvane at the start of the year.  I have also taken part in the Reclaim Your Voice march in Edinburgh at the end of March, and in October, I was an official speaker at the Hardest Hit demonstration in October in Edinburgh.  I could not have done this without the NUS Scotland Woman’s Officer, Kelley Temple.  While on the subject, thank you NUS Scotland Women’s Conference Delegates of 2010 and 2011 for voting Kelley Temple as your woman’s officer as she is probably one of the most understanding people I know.  She understand compassionately not only about women’s issues, but about the issues of black, disabled and LGBT students as well.

So what about 2012?  Well, if I could choose to do anything this year, I want to start a business repairing people’s computers.  It is something I thoroughly enjoy.  It’s not just about making money, but it’s about doing something I enjoy to help other people.  Unless any job offers come up first, I am go0ing to make a concerted effort to start my business.

Sorry this blog post has appeared quite negative.  Some of you may think that I should not be writing on here about my depression, but I do it because I hope one day I will be able to overcome it, and when I do eventually overcome my depression (which I hope I will), I can blog about it here, and hopefully help any readers here that also have depression.  It IS a real condition, and we all handle it differently; and it is CERTAINLY not the person’s choice to be feeling the way they are.  If we could magically “cheer up” we would.

Apart from all that, all that is left for me to do is to wish you all a very happy and prosperous new year!

Jay Employment, Jay Life

Been on the radio

By JayNo Comments

Sorry that it has been such a long time since I posted up on here. It has been a mad couple of months. I have been searching for jobs and trying to use vintage laptop collecting to overcome my depression, and I have been working on the ShmuWORKS course in Aberdeen, a course where they teach you about radio production while at the same time running workshops to help you find a job. The show was broadcast today on Shmu FM on 99.80 in Aberdeen. However, you can listen to the show by clicking here

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Preparing for the Hardest Hit rally

By JayNo Comments

The Hardest Hit campaign is a campaign that is doing what it can to fight against the cuts to disability services which is happening as part of the ongoing ConDem (Conservative-Liberal Democrat) coalition’s welfare cuts.  As part of this campaign, there will be protests across the United Kingdom.  I will be present and kilted at the Edinburgh rally.  Because of this, I have come down to Edinburgh today and will be staying until the rally on Saturday.  It has actually been quite a busy day.  I woke up at around about 7:30AM and decided that it was in my best interests to shut off my alarm and go back to sleep, so that is what I did.  Because of this I was able to successfully miss not one but two trains, and almost missed a third.  Luckily though I managed to get a taxi to Aberdeen station in good time which meant that, with some help from Aberdeen’s very helpful station staff I got a seat at a table.  I must say I find ScotRail to be very friendly and helpful, and because I travel with them a lot they knew who I was.  The journey to Edinburgh was pleasant enough; I was able to work on my speech for the rally on Saturday  (thanks to the NUS Scotland Press Officer Mike Heffron for getting me that opportunity), and even watch a downloaded episode of Stewart Cheifet’s The Computer Cronicles about the Commodore 64.

As I am staying in Edinburgh, NUS Scotland have paid for a very nice room at the Balmoral Guest House.  I arrived there and the person there has been extremely helpful.  He got me the keys to my room which is very nice.  After looking at the web-site, I think that the Balmoral Guest house appears to represent good value for money.

After checking in at the guest house, I went off to the office to make some magic happen.  I rung around a few unions and am hoping that I will be able to mobilise Edinburgh Napier to come along to the Hardest Hit rally.  I have also been in touch with RNIB Scotland who are going to be attending the march, and on advice of the NUS Scotland president Robin Parker, I have asked about volunteering opportunities, and have been put in touch with someone that works with home technology, including computers, so phoning the RNIB has potentially opened up an exciting opportunity for me!  They have also invited me (and my comrade Graeme Kirkpatrick, NUS Scotland Vice President) to the reception they are having directly after the rally, so hopefully I will get to meet lots of people there.

All in all today has been quite an exciting day, and I am looking forward to the Hardest Hit Rally.  Tonight I am hoping to spend some time with my NUS colleagues, before heading back to the Balmoral Guest house to work on some materials on my Disabled Students’ campaign that will be circulated at the Student-Led Teaching Awards conference tomorrow in Glasgow.  While this is happenning, I will be preparing for the Hardest Hit rally with some people from Heriot-Watt university union.  While ringing around various people today, I have, for the first time, actually spoken to the head of the Moebius Research Trust.  Previously I have only been in contact with her by e-mail, but today I was talking to her about the Hardest Hit rally.  She is extremely friendly, and is a fantastic person to work with!

Everytime  I do any disability activism work I always feel happy, and today is no exception.  I really do hope that the Hardest Hit March is a success!  I am hoping that we can work positively with the Scottish government to find a solution that will work both for the public purse and people with disabilities.

Jay Disability Activism

R.I.P Steve Jobs

By JayNo Comments
Picture of Apple's 21.5-inch and 27-inch iMacs side by side

Source, Apple Inc.

 

Yesterday the world lost one of the most charismatic and innovative industry leaders.  Steve Jobs peacefully passed away at his home surrounded by family on Tuesday October 5th 2011.

Steve Jobbs co-founded Apple in 1976 with childhood friend Steve Wozniak (a.k.a. the Woz) and they built the original Apple 1, which looked more like a typewriter in a wooden suitcase than a computer.  Since then though Apple have been turning out some fantastic products.  Steve Jobs was ousted from Apple in 1984 but then went on to co-found Pixar (which have made such titles as the Toy Story trillogy, Monsters, Inc., and of course Finding Nemo).  In 1985 Steve Jobs founded NeXT inc. (later NeXT Computer Inc.) where he came up with NeXT-STeP which was basically the forerunner to the modern Mac OS X we know and love today.  When Apple acquired NeXT back in 1996 they had Steve Jobs back and he turned the then struggling Apple around.

In 1998, he came up with the original iMac which showed that computers could look good.  In 2001 he completely revolutionalised the music industry with the iPod and iTunes.  He made it easy to buy music to download legally.  In 2007 He came up with the iPhone and in doing so he made the Smartphone cool.  Up until then I do believe Smartphones were very much NOT cool and were seen as geeky, and not even in a good way!  In 2010, Jobs did it again with the iPad, but this time he effectively came up with a product and created a market for it.  I do not like iOS very much but I do believe that modern smartphone’s ease of use and the easy way of obtaining more applications has been inspired by iOS.

Of course everyone will remember Steve Jobs for the iPod, iPhone and iPad as well as iTunes and iOS, but I personally will remember him for Mac OS X, and of course his computers.  I am a fan of apple not because of their shiny new iPads that are thinner than a roti (a chapati), but because of Mac OS X and it’s solidity.  Mac OS X is in my opinion much more reliable than Windows.  Sure Lion DOES have it’s teething problems, however I am confident that Apple will sort these out!

the Pièce-de-resistance in my opinion about Apple is the way that they have brought Assistive Technology to the masses.  Long-time readers will remember how I cooed over Universal Access in 2008 when I bought my first Mac.  Suddenly it seemed we DID NOT have to pay those obscene prices for packages like JAWS and ZoomText, and because Apple’s Universal Access and VoiceOver were integrated into the OS, running VoiceOver or the Zoom utility would not tie up the computer’s resources to any great deal like JAWS and ZoomText seem to do over Windows!  If anything pays testament to how well Apple can do Assistive Technologies, it is the army of blind people who use iPhones, not just for basic calling and texting, but to access the Internet, send and recieve e-mails and make use of Apps.

One thing that hit home with me was that Apple used the slogan “While some see them as the crazy ones, we see genius. Because the people who are crazy enough to think they can change the world, are the ones who do.”  I think we should all take this and let it give us hope.  I am one of these people who do want to change the world, to challenge disablism, and thanks to Steve Jobs, I have renewed hope that one day I will actually change the world, just like Steve Jobs did.

When I think of Steve Jobbs, these things are what I will think about!

Thank you sir for my computers and the amazing operating system that they run and may you forever rest in peace, Steve Jobs and that you continue to innovate in Heaven!

Jay Apple Mac, Jay Assistive Tech, Jay Computers

Congratulations are in order

By JayNo Comments

I would like to congratulate my brother and his girlfriend on the birth of a wee baby girl at 12:27 on October 1st 2011.  Methinks drams need to be handed out!

Jay Life

Disclosing Disability Workshop

By JayNo Comments

Today I went to a talk at North East Sensory Service (formerly Grampian Society for the Blind) on disclosing disabilities on job application forms.  The talk was given by the vice chairman (I think) of North East Sensory Service.  He spoke about his experience and what happenned when he lost his eyesight, and how he was scared that registering as visually impaired would mean he would never work again.  It was an interesting talk and it brought some interesting issues to the table.  I personally think that whether or not to disclose disability is a contentious issue.  I believe there are some unscrupulous companies who may see that you have identified yourself as having a disability and they may then choose to discard your application because of this.  The best way to get around this though is if/when you receive a rejection letter, you should ring the company’s HR department and ask why you did not get the job.  Do not go in all guns blazing ranting about disability discrimination (yes, a wee bit rich coming from me) but just ask calmly and politely and hopefully they will point out where you failed, so that you may fix the problems for the next jobs you apply for.  If it turns out you were qualified, hopefully you might have put someone on the spot enough to get an interview out of them.

Now that I have finished University I am claiming Jobseeker’s allowance, and I believe that they are too harsh on people that actually want to work.  Sure, they have to be harsh on people who are actively choosing not to work, but I am actively choosing TO work, and I find that I am being put under pressure to apply to four jobs a week.  It does sound simple enough, but in reality there are a lot of jobs that I cannot do due to my disabilities, and I apply for what I can.  I am currently playing about with the idea about setting up my own computer repair business as that is something I know about, and a skill that I can actually sell.  I also specialize in assistive software, so in theory I could be called by companies wanting to make their equipment more accessible.

I was originally submitted to the Work Choice program, and again I feel that they are pre-programmed to assume that everyone does not want to work, rather than the fact they find it hard to.  I started by detailing the difficulties I would have with certain jobs (foolish come to think about it), and the person there said simply that there were a lot of negatives about working in what I said and asked if I could think about any positives about working.  Something very rare then happenned – this left me pure speechless.  I want to work, and have been working hard to try to apply to whatever I can.

On a more positive note, NESS have an employment advisor who works with people to help them find work.  I feel that this service is invaluable.  She talks with potential employers to explain about things like access to work, and this I feel can help people who make use of NESS’s employment service as companies can hear from an official standpoint that a person with visual or hearing difficulties who may be applying to a job will be able to do the job, in part because of access to work, which supplies assistance at no cost to the company.  I have used NESS’s services before with positive results; my former employment liaised with Asda during the application process and together they were able to work out how I could work for them.  Because of this, I will be making full use of NESS, and I encourage anyone looking for a job who has visual or hearing difficulties and who lives in the Grampian and Moray areas to do so as well.  They can be found at http://www.nesensoryservices.org/.

I think while we have a Conservative government our culture will centre more about blame than merit.  What I mean is the powers that be will always find fault with people who struggle.  The walfare cuts including Disability Living Allowance seems to have re-inforced the view that disabled people ‘get it easy on benefits’, and this has lead to a rise in Disability hate crime.  I would like to set the record straight.  We do not ‘get it easy on benefits’.  We need things like DLA for extra costs incurred by our disabilities.  I for example need more lighting in my flat due to my being visually impaired.  I am also more likely to need taxis to take me from place to place if I don’t know where a place is, or if a place is inaccessible due to tricky roads, and in Aberdeen that is a very expensive business!  You ever heard the saying that you need to speculate to accumulate?  Well, if I can continue getting this financial help to live, I am more likely going to be able to actually go out, and look for work (or set up my business).

I feel that if we want to get people back to work, we need to be positive about it, and not automatically attack people for being out of work!  the government keep telling us how it pays to work and that we must all work, and yet they seem to be cutting services that would help us to actually get in to work such as access to work, and the placement scheme where the government pays 50% of a person’s wages to work with a particular organisation.

Jay Disability Activism, Jay Life

Eventful Summer

By JayNo Comments

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Readers I would like to apologize profusely for not having blogged all summer since June.  I have been very busy.  As you know I was made NUS Scotland Disabled Students’ Officer in May, well it’s all been go from there!

First off I went away on a training weekend in Dunkeld in Perth and Kinross.  On this weekend I met the Scottish Executive Committee of NUS Scotland for the first time and I must say they are all a friendly bunch, even if we do have what the training co-ordinator might call storming periods from time to time. Everyone on the committee seems pretty accepting.  The weekend was really quite fun with a plethora of activities including learning how to give a good speech, doing short presentations on what made us run for NUS positions in the first place, and lots of teambuilding activities in which we built bridges, came up with our own priority campaigns and made scenes of what we thought certain phrases meant to us

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I have forgotten what word this photo was meant to represent, but it certainly grabbed my attention while I was flicking through my photo collection.

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I remember that this photo represented the word ‘change’ – simples!
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After I came home from Dumkeld however my depression flared up.  I have been having problems with depression over the summer.  I had to dediacte a lot of time to searching for a flatmate, and for a while I was contemplating having to move into another place and hopefully find flatmates through Gumtree to live with.  However I was told by my former mentor about a web-site called Spare-Room.co.uk.  After searching for around three weeks of posting adverts (I paid extra for bold adverts) and showing people round my flat I got a response in Mid-July from a girl who was interested in the flat.  After a couple of visits she decieded to take the room and move in at the end of July.

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After my new flatmate moved in, I started to become really busy with NUS Scotland.  I went down to Headquarters on July 29th to have a meeting with the other liberation officers that did not happen as only two of us was able to make it.  However took Betsy (my MacBook Pro) along with me and was able to do some work in the office, and also order somebusiness cards.

The next meeting I was able to attend was the SEC meeting in the middle of August.  When I am with the committee I do feel quite empowered and feel like I want to change things.  My priority campaigns for this year are the Save our Services campaign which will focus on protecting local services that support disabled people such as the North East Sensory Service or Grampian Autistic Society from the ongoing government spending cuts.  My second priority campaign is the one I am most passionate about, the Challenge Disablism campaign.  Disablism for those of you readers who don’t know is the discrimination of people with disabilities.  This campaign aims to focus on targeting disablism in student unions and educate people on how disablism is wrong.

Shortly after that meeting I had my first committee meeting with my committee.  I have never chaired a meeting before and it was quite nervewracking but with only three other members it was quite easy.  I was able to use Skype Premium to Videoconference to members who could not make it to Edinburgh.  Since the meeting I have met someone at Edinburgh University who I am wanting to co-opt in, but I need to wait for a vote from my committee before I can do that.

Literally the day after my committee meeting I went down to Stirling for The Gathering.  The Gathering is an event held by NUS Scotland at the start of the Academic year so that officers and sabbs (Sabbaticals) from other universities can meet each other.  Workshops are run at the Gathering on a variety of things.

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In my opinion every organisation should have this sign and uphold what it says.
The Gathering was very good, I was able to meet a lot of people and talk about my campaign even though I didn’t have a Workshop slot.  The Gathering was hosted by Stirling University who have a very beautiful campus, as the above photo shows.  The staff at Stirling were very accommodating to my needs, as well as the needs of other disabled people.  I was able to get a room with all of my SEC peers in case I needed any help with getting anywhere.

After The Gathering I had to help out at Freshers’ events and had another SEC meeting in Dundee, and today I have met the National Disabled Students’ Comittee for the first time, albeit through Skype Videoconferencing as they meet in London which is just too difficult for me to get to just for a day.  I like some of the work that the national committee are doing.

NUS aside, this summer has been quite hectic in other ways.  In July I graduated from Aberdeen University with a designated degree in Computing Science.  I now know I should have probably looked to take that year out.  Because of my depression I have completely failed fourth year.  I will say however that I was very well supported by Aberdeen University and as such was able to pass the mentoring course.  Graduating from University means I am no longer a student, and that means I am now looking for a job in the quagmire of unemployment created by David Cameron and his conservative cronies who are attempting to lead a coalition with the Liberal Democrats who sadly appear to have caved into the demands of the tories for the most part.  The end result is that I am finding it extremely difficult to find work.  To qualify for Jobseekers’ Allowance you have to be able to drop your CV into at leas tfour places a week, and I must confess to finding that difficult as there aren’t the jobs out there.  Due to my disabilities I am unable to do most menial jobs that none-disabled people can, such as waitering, kitchen work, and I even find stock placement in a shop difficult.  However what seems to be the biggest problem is that employers do not like taking on disabled people, and now wiith the limit on jobs, only the best of the best are able to get jobs.  I am feeling under immense pressure to deliver to the terms set down by the JobCentre and as a result I’ve had to apply for jobs that I know are completely unsuitable for me, which wastes everybody’s time.  Also I only have a designated degree which makes things even trickier now as it seems you need at least a 2:1 to get a graduate job.

This summer to try and get over my depression I have been re-acquainting myself with my geeky side.  I have been wanting to buy an older games console since March and in June I bought a SNES

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I must admit I never had a SNES as a child but I have played it before, and have hadthe Gameboy and Gameboy Advance.  After spending my time playing modern games like Grand Theft Atuo IV and Forza Motorsport 3 I must admit it is very refreshing to play games like Super Mario World which are fun, simple and colourful and enable you to pick up and put down as you please.  I feel the gaming industry has sort of lost its way.  In the ultimate quest to become as real and immersive as possible (which it is doing really really well with), games designers have forgotten that they are aupposed to be developing games.  OK, yeah I like GTA, and most other Rockstar titles, and racing games such as Forza and Gran Turismo, but where are the colourful platformers I grew up with?  The Wii is closer to a fun console than the XBox and PS3 are because of the games it has to offer, but it it annoying to always have to waggle your Wii-mote at it.  The Wii is a completely different type of console, and the reason I bought one was so I could entertain people and be sociable.  The Snes however is just a fun simple games console that has a fantastic array of games available for it.   They’re not cheap either – ones with decent games tend to start at £35, and that’s not including a box.

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I’ve also been getting back into playing with old operating systems.  Using VMWare and Virtual PC I am able to run just about any version of Microsoft Windows.  This rekindled interest has been helped along by the discovery of YouTube user roadgeek‘s channel.  The person behind the roadgeek moniker is an American from “the home of Carolina Circle Mall” in North Carolina, and among other things he is interested in Packard Bell PCs from the mid-90s, specifically machines built from 94-97, and it has been fun watching his escapades with very cheap machines bought from his local Value Village.  Now, Billy Coore has quite an impressive collection of Packard Bell PCs from 95-96 and actually has real-world uses for them – playing old games.  However his subscribers journey with him on his ultimate quest to find the machine he had as a child – or at least an example of one – a Packard Bell 822CDTW Minitower computer from 1995 that ran Microsoft Windows 95 RTM.

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In mid-August I deicded to ring Vodafone that I wanted to continue my contract on the advice of my friend, and while on the phone the conversation turned to upgrades, and the advisor asked me what phone I would like, to which I replied I wasn’t looking for a phone, but out of curiosity, how much would I have to pay for an HTC Sensation.  After some discussion I was able to get the HTC Sensation for £25.64 with 600 minutes, unlimited texts, 500MB of Internet and of course Stop the Clock which I use a lot.  However I later realised I would need the 900 minutes I used to get because I do use my phone a lot during the day, so I rung up again and was able to get 900 minutes in place of 600 for £5 extra.  While sorting out a deal on my phone I was able to obtain a SIM only contract for my Samsung Galaxy Tab for £7.50 a month which supplies 1GB of Internet, which is less than what I have been paying.  To cap it off, Vodafone have given me the first three months’ rent for £5 on my tablet contract.  The Sensation is a brilliant phone, but not one I would have normally upgraded to from the Desire HD if I’d have bought it outright.  The screen is nice to use, and the phone feels nice to hold with a rubber and metal back.  However I don’t like videos will have awful voice distortion with the stereo mic enabled, nor do I like how fonts have become smaller thanks to the high resolution.  HTC Sense has no way of enlarging the fonts in menus and the text message app, which will let you enlarge the fonts, won’t enlarge them enough.  As a result I have installed Handcent SMS to my Sensation which is a much more feature-rich SMS application, which allows you to not only enlarge your fonts to pretty much any size, but change the actually typeface as well if desired or required.  I was worried that Vodafone would have locked a lot of the features down on the Sensation as they had with phones in the past, but I was pleasantly surprised to see that they hadn’t.  I love this phone, however I believe HTC need to sort out the problems with text size as fully sighted people are even having trouble with certain aspects of it, so I really do struggle sometimes.

In other news I finally have my own kilt suit!  I bought it from a place in Edinburgh called Scotch House which is essentially a Scottish gift shop, but they sell kilt suits. I went down to Edinburgh that day to meet one of my friends whom I had met online through people involved with NUS.  They came to stay in the borders for a while and while there we met in Edinburgh, and ate at Bar Napoli (my favourite Italian restaurant) and went out to look for a kilt!  It is in the MacDonald tartan.  I am very happy that I finally have a kilt, and can proudly show my Scottish heritage.

Jay Academic, Jay Android, Jay Computers, Jay Internet Pearls, Jay Life, Jay Mobile Devices, Jay NUS Scotland, Jay Photies, Jay Trips

NUS Scotland Disabled Students’ Campaign

By JayNo Comments

Hey, I am sorry I have not been on here in a long while.  Again I have had major problems with depression.  However a few good things have happened.  Firstly I have handed in my final piece of coursework for my degree.  It was a multimedia project for the Communicating Computing course.  Secondly, at the NUS Scotland Disabled Students’ Conference on the 25th May, I ran for NUS Scotland Disabled Students’ Officer and I have got the position!  I take office on July the 1st.  As a result, I now have an NUS presence on Facebook, which enables me to be professional with people I meet within this post.

Back to the topic of my final assessment, I had my mentor interview me on my experiences as a disabled student of Computing Science at Aberdeen University, any advice I would give to disabled students at Aberdeen University, and my thoughts on mynew role as NUS Scotland Disabled Students’ Officer.  I uploaded this video to YouTube and because of yhis, I am able to embed the video in this post.  Please enjoy!

 

 

 

I am sorry I have not blogged more frequently.  I will do my best to keep you posted on my experience as the  NUS Scotland Disabled Students’ Officer

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Spring is actually here!

By JayNo Comments

Sorry I have not been around for a long time, yet again!  There has been a fair amount happen on here since I was last on, so let me regail you all of what has happenned from a wee bit before the first World Moebius Syndrome Awareness Day upto now.

A week before World Moebius Syndrome Awareness Day I was feeling a wee bit ‘under the weather’ as it were, so I went away to Dalmally to see my somewhat distant cousin and his family.  Now at this point you are wondering where ‘Dalmally’ is, in fact some of my readers might even be wondering ‘What is a Dalmally?’.  Dalmally is a wee village in Argyll & Bute in West Scotland.  I had a fantastic time out there.  My cousin’s wife took me and her son out to Fort William, via Ballahoolish, Loch Awe and Glencoe. After Fort William we saw Ben Nevis before going back through wee Atlantic town of Oban.  I have to be honest – I always am overawed by the beauty of Scotland – especially the west.  One of my all-time favourite places in Scotland is Strontian which is on the north side of Loch Sunart.  It is pure magical out there!  Unfortunately we didn’t quite make it to Strontian that day but I hope to go back soon!

In January I had the first semester of this session discounted because of all of my personal difficulties that I had been through.  This means that I will be redoing Semester 1 next year.  In the meantime I have been plodding on with Semester 2.  Unfortunatley I am still coping with depression, so my Academic process has been very very slow and at times not so steady.  However I am slowly but surely completing things.  As well as my dissertation module, I am doing a Professional Skills module, and had to give a presentation on Assistive Technology for Visually Impaired people which actually went well!

Academics aside, I have sold the Nokia N8.  It wasn’t working out for me, and after waiting such a long time for the elusive PR1.1 software update I was disappointed to find that Nokia had neglected to implement the portrait QWERTY keyboard.  As I do send a fair amount of e-mails from my phone on the move, I decided it was time to sell the N8 and go back to an E72 because it was a phone that I have had before and got on with, and above all else it has a physical QWERTY keypad that I can use very effectively.  Meanwhile I was finding the need for a Kindle was increasing due to my having to do lots of reading for my dissertation.  I didn’t fancy having to be in front of the computer for too long, and I wanted to be able to do some reading if I was going to be going anywhere.  I was going to buy an Amazon Kindle until I realised that trying to read PDF files was going to be difficult due to my needing to be zoomed right in.  I therefore decided on a Samsung Galaxy Tab.  I got this SIM Free from the Carphone Warehouse.  At first, I thought it was a wee bit gimmicky, however after using it to read texts I found on Google Scholar, and downloading the Kindle app for Android and building up a sizeable collection of C# textbooks (Including The Yellow Book by Rob Miles), and another trip to Dalmally on the train, I have found that my Galaxy Tab is a very useful machine to have.  Not only can I use it as an eBook reader, but I can use it to browse the Internet to quickly look things up on the move, and use Think Free Office which comes pre-installed to quickly write and edit documents or even look through documents I have stored on my DropBox.

This semester I was nominated by Karena Youngsen the NUS Scotland Disability Officer for the first NUS Scotland Equality and Diversity award.  The reason for my nomination was because of the work I have done with AUSA over the past year.  This time last year, for example saw me in the position of School Convenor for Natural and Computing Sciences.  To top this I had a seat on the Senate.  From September onwards I have been on the Equal Opportunities Committee as an Ordinary Member.  However it wasn’t just my work with AUSA that got me the award nomination, my mentoring work was also acknowledged as was my work on the NUS Scotland Disability Committee and my work with the various Moebius Syndrome charities.

I received an e-mail in February telling me I had been shortlisted for the award.  I found this surprising, as I never thought that I would be up to NUS Standard.

The NUS Scotland Conference took place on the first weekend of March in Irvane which is near to Ayr.  As I had completely forgotten to tell Karena that I had been short-listed for the award, I wasn’t initially invited.  However on the Saturday night I got a call from my mentor who had been invited, and was told that I had won the award.  Being the fantastic person she is, my mentor worked out with Karena a way to invite me to the conference, so I went down on the Sunday to the conference.  I missed the Disabled caucus as I wasn’t able to arrive in time.  However I was able to do some of the activities they had laid on, and was able to receive my award personally and make a speech.

I would like to thank NUS Scotland for my award, Karena Youngsen for all the opportunities I have had with the NUS Scotland Disability, and my mentor who has helped me to get where I am Academically, and otherwise.

More recently, I was down at the Reclaim your Voice march in Edinburgh.  I had a very good day out, and the march was good natured and fun, and there was a sense of passion for the cause in the air.  When the march arrived at Hollyrood place, politicians from the SNP, Scottish Liberal Democrats, Scottish Labour and the Scottish Green Party came to talk to us, as well as Liam Burns, the incumbent president of NUS Scotland came to address the march.  I must admit I felt it was more of a celebration of what we in Scotland have achieved.  Scottish people CAN access free education, and we are doing our best to keep it that way!  Listening to all the speeches makes me proud to be Scottish.  I do hope that whoever wins the Scottish election will keep their pledge to keep University education free.  I do not believe that you should have to pay for your University education.

After the march, we all went back to the Edinburgh University Union.  I am sorry to have to say this but while the staff at the University were friendly, I must admit that I did struggle with the steps at the entrance to the union, and I feel that it is also way too dark.  Unfortunately though they cannot nose the steps outside as the Edinburgh University Union building is listed.  Personally while I appreciate that we need to keep buildings as original as possible I feel that they need to nose steps.  Visually Impaired people like myself could have an accident on them.  I always thought that health and safety came above everything else.  It appears however that I was wrong.

Overall I think that between the World Moebius Syndrome Awareness Day and now has been a varied time for me.  At the moment I feel that I am very depressed and am finding it difficult to concentrate on University work and spend a lot of my time in bed.  However I am trying to motivate myself to do work.  I have my final year project which I am doing in C# and I am enjoying studying C# using the Kindle version of C# for Dummies, so I do hope that I will be able to make a lot of headway with my dissertation very soon.  All I can say for now is – Aberdeen University are being very supportive of me and are being very patient with how I am feeling at the moment and I would like to thank them for that.

Jay Academic, Jay Android, Jay Asperger Syndrome, Jay Assistive Tech, Jay Computers, Jay Life, Jay Mobile Devices, Jay Nokia Series 60, Jay NUS Scotland, Jay Photies, Jay Trips, Jay Windows Phone 7
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